I guess I should be flattered when someone says that. Some days I just want to turn inside out and show them my guts and say, “Look! Horrible huh?!”
Sometimes I think I should keep a copy of the CAT scan with me so I can show everyone why I feel like hell. “What is PKD?” THIS!” and show them the CAT scan.
I know no one means harm by saying I don’t look sick. After 3 years of being relatively private about my disease, somedays I just want to talk about it.