Welcome to the first public entry for “How to Smile and Live with PKD”!
For a few years now I have encouraged Shannon to create a blog to share his story. Share how his PKD has impacted, inspired and changed his life forever. Over the past year I have been quietly blogging on my own as an outlet for someone quietly living as the partner to someone with PKD. There are many symptoms that cannot be found in a textbook or by reading symptoms on WebMD and Dr. Google. Things that have taken place that I never would have expected when he was first diagnosed.
We are both very private people when it comes to our personal lives. There are many things even our closest friends and family members might be shocked by. It is my hope by sharing our inner thoughts, feelings, and experiences it will help others that have PKD or might be taking care of someone with PKD.
It has been a time of discovery and growth. A time when we realize how precious the little things in life are. As time has progressed it has been a roller coaster of emotion for our relationship, our friends, our family, and our professional world. A roller coaster that I would never wish upon my worst enemy.
I will be posting regularly to share previous posts from our private blog as well as more recent items as well. Stay tuned!